Er is 1 resultaat gevonden
- 19 mei 2022, 00:21
- Forum: Open forum
- Onderwerp: Survey on Childhood Onset HSP
- Reacties: 3
- Weergaves: 35971
Survey on Childhood Onset HSP
Hello! My 3 year old daugther has early onset de novo complicated SPG3A. I have joined forces with another mum, Bridget, whose 18 year old son has de novo complicated SPG4. We have organised a survey. Our main goals are to create an informal register, help parents connect and inform research where p...