Er is 1 resultaat gevonden
- 08 feb 2018, 19:37
- Forum: Open forum
- Onderwerp: Okur-Chung Neurodevelopmental Syndrome csnk2a1
- Reacties: 3
- Weergaves: 11126
Re: Okur-Chung Neurodevelopmental Syndrome csnk2a1
Hi There We also have a son who has recently been identified as having the Okur-Chung syndrome and was part of a recent research paper. We have the paper, which is in English and would be more than willing to pass it on to you. As parents, its obviously very important to be able to educate ourselves...